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ieatbigtitss:superwholockalypse: dreamingofdoctorwho: colorsofsocialjustice: colorsofsocialjustice: contra-indication: spondylitis: The nerve!….This goes out to all the spoonies. Read this: “My name is Emelie Crecco, I’m 20 years old and I
painmanagementprincess: housewifeswag: ieatbigtitss: superwholockalypse: dreamingofdoctorwho: colorsofsocialjustice: colorsofsocialjustice: contra-indication: spondylitis: The nerve!….This goes out to all the spoonies. Read this: “My name
actuallyintroverted: Friendly reminder that chronic illness is not relaxing or enjoyable. When spoonies are lying in bed all day, it is because we are in so much pain we cannot function. What Those with Chronic Pain or Illness DO Want to Hear
princesstonisha: #Repost @mrswelches #Esrd #Ckd #ChronicIllness #KidneyFailure #ChronicGurlz #Spoonie
Trying to explain your life to non-spoonies
abnorm-ali-ty: Got Spoons? Spoonies! Get your very own Got Spoons T-shirts, Stickers, Tote Bags, and more here! [x] Earnings (about 10-15% of sales) go towards funding my much needed service dog (:
annyvette: #mctd #autoimmune #chronicillness #stillgoing #strong #spoonie
livingthespoonielife: Spoonie conversations tend to start with……..
purpleviolin91: #crps #chronicpain #painwarrior #crpswarrior #fibro #spoonie @onedirection4evas
Have you ever been OOC scared to speak to someone in RP?
Sick people problems...
First day back to work after 7 off … here’s hoping I’ve saved up enough spoons to deal with it :( Right now the bipolar’s stealing them away as it kicks my feet out from under me.
caitlinnoel: Everything hurts. 😐 #chronicpain #painsomnia #OccipitalNeuralgia #fibromyalgia #invisibleillness #spoonie
When someone asks a fatigued spoonie if they want to "stay up and do something fun..."
When people say what a tragic little hero I am for doing everyday mundane things...
Being a functional human being...
crohns-sucks: neecygrace: Today’s picture for invisible illness is a personal one. This is one of about 30 notes that my friend has received since using her handicapped placard. I’m going to say this to you, have you ever seen someone get out of
chronicillnesstruths: Sometimes I worry that people don’t get pain humor. Like, what my fellow #spoonies and I consider a joke, most people probably interpret as us trying to get attention, being horribly depressed, or we’re about to fall apart,
toastyfoxito: bittergrapes:goldenheartedrose: Idk. I have difficulty with full gallons of milk and orange juice. This could be really great for people with dyspraxia or other disabilities that cause weak motor skills. Don’t you love it when people
thischroniclife:mordsithcara:I don’t have kids yet, but as soon as I saw this I knew I had to grab it. It’s such a great book for spoonie moms.http://www.amazon.com/Why-Does-Mommy-Hurt-Fibromyalgia/dp/1478732962
like-an-amazon: You are not allowed to pretend that I am not sick.You are not allowed to say that I limp because I am seeking attentionYou are not allowed to force me to walk faster than I am ableYou are not allowed to call me lazy when I spend the day
thepositivespoonie: more positive spoonie quotes ☼
lifeofacrohnie: I recently received fan mail from bassguitarwitch asking about brain fog and IBD and gluten intolerance/celiac disease and I thought it’d be easier to answer in a post. Brain fog is a form of fatigue which is a common symptom of IBD.
To my fellow spoonies
astralizey: kickassfanfic:trichotillomaniak: spoonie-living:inkskratches:fallen-angel-with-a-shotgun:pastelmorgue:hottermelon:2000yr:I didnt kno they had thesebrow extensions Okay but do you realize how good this is for cancer patients?? People with
Hey fellow spoonies! I need your help with a thing
thekidinme101: ehlersdanlossupport: Spoonie life but bedtimes stink!
seelcudoom: wetwareproblem: closetskeleton666: spoonie-sone: mogifire: Harley & Ivy This is why I love them! Harley is an abuse survivor of course she’d wreck this dude!!! Can I just say how much I love the implications here?Harley and Ivy
Chronicles of a Spoonie
Using an old selfie for #invisible illness week. i hope that’s okay.The first time I suffered from Costochondritis, the pain was 10/10. I couldn’t think about anything except the pain. I couldn’t move, I couldn’t breathe, I couldn’t not breathe
I have to wear a heart monitor for 2 days to capture the WPW on record. Then I have to go see my cardiologist near the end of February. If I need that ablation to correct this, my mom’s probably going to fly out. If I get the ablation and it corrects
I can’t go to the gym til 6 weeks past my surgery date which is still 10 days away but then I consult with a cardiologist and MIGHT need heart surgery. So that’ll mean another long recovery. But if I do have this heart surgery, it’ll probably make
I got my heart monitor in the mail today. I have to keep that phone within 10 feet of me at all times so it can send my recordings in right away. Hopefully I won’t need heart surgery but I probably might :/
I have this chronic pain condition and it doesn’t flare up a lot but when it does, it’s excruciating. The muscles around my heart and along my ribcage become inflamed and the first time it flared up, I honestly thought I was having a heart
How I feel today. My chronic pain and illnesses are really messing with me lately and I can’t make an appointment til Monday.
I only managed to do a little cardio at the gym today. My joint pain flared up and it felt like my bones were being ground up so I went home early. I’m not going to quit though. I still hope losing weight and being active helps my joint pain like
I’m starting to think i might have endometriosis. I don’t think they caught all the lesions during surgery 1.5 years ago. I’m in so much pain😩
Well the good news is I got my thyroid meds refilled. No more being nauseous 24/7. Now I’m starving all day and night. I can’t sleep, and I can’t eat a full meal without feeling like I’m even hungrier than before. My stomach is
Something’s definitely wrong with my bones. Nurse with my lab results was throwing around words like connective bone tissue disorder and elevated liver counts. I’m not going to Oklahoma this weekend to see my husband in case I need to go back
The bone and muscle pain, the 2 blood draws, the flu shot, and now my period from hell. I’m in so much fucking pain.
Doctor called today.
I met my new doctor today to take charge of my reproductive health and she was so incredibly nice and kind and listened to me. She also said that despite everything wrong with my body, I have absolutely perfect blood pressure. So I got that going for
My arthritis is killing me tonight. I can’t get seen by a rheumatologist for almost a year. This shit’s exhausting.
heroineheroine: spoonie-cat-lady: catsbeaversandducks: This cat fell in love with a baby before he was born and now guards him all the time. Photos by ©Liel Ainmar Assayag - Via Pregnancy Videos This is so beautiful!!! 😭😭😭😭😭😭😭😭
superwholockalypse: dreamingofdoctorwho: colorsofsocialjustice: colorsofsocialjustice: contra-indication: spondylitis: The nerve!….This goes out to all the spoonies. Read this: “My name is Emelie Crecco, I’m 20 years old and I have cystic
You spoony bard!
fuckyeahfeminists: iwakeupblack: native-detroiter: raretowelldone: beatainspace: nuestrahermana: livingstrong4us: Any Questions? Hmm, I was under the impression that this blog was about chronic illness, education on it, spoonie community… not
unedited-spoonie: the-psychlife: ssaisstopsexualassaultinschools: Consent Education. THIS IS IMPORTANT. And please note that there are no specific pronouns. Consent is ALWAYS required from ALL individuals, regardless of gender, sex, relationship,
Epileptic Spoonie
Life Hacks for Spoonies
ajleanon5: asexualautistic: flipface4: pink-nympho: babypinkmermaid: unedited-spoonie: the-psychlife: ssaisstopsexualassaultinschools: Consent Education. THIS IS IMPORTANT. And please note that there are no specific pronouns. Consent is ALWAYS
cookiekit: spooky-spoony: omgtsn: poeticus: anxiousbagel: emotionally manipulative things you should never say to people: “i would kill myself without you” “everyone leaves me, don’t leave me like they did” basically anything that guilts
flor-y-amor: scarilysweet: Todays scrambled advice from a spoonie:Stop denying yourself the right to buy things that help you. Even if they’re things you can *technically* do without. Go ahead and buy yourself a shower chair that makes showering
mutant-spoonie: people can be toxic without being abusive. sometimes you need to be away from people who aren’t abusive and genuinely do mean well. you don’t need to dislike a person, or not forgive them, or think they are bad to justify not being
aeloreus: spoonie-princess: accidentalbeardo: poppunkvampire: a helpful pain scale for people who have difficulty with doing body inventory or quantifying pain 0-10 Scale of Pain Severity 10 - Unable to Move I am in bed and can’t move due to my
rubykgrant:robotslenderman:theconcealedweapon:spoonie-waagosh:cosmicpaladintaka:nudityandnerdery:libraford:libraford:libraford:libraford:I’m saying this from a place of genuine care: if you are seeing ghosts or shadows or having nightmares…