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forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

mandymorbid: Ahh nostalgia…I’m oiled with olive oil here because no one setting up these shoots ever thinks “oh what if my modle is allergic to baby oil?” Also notice all the hyperextending elbows and whatnot. #Ehlers Danlos Syndrome #spoonie

Ehlers-Danlos Syndrome

sonolocchiodelciclone: forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

prettysicksupply: lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

vaspider: punkrocklorax: malociraptor: Hi! I’m a Build A Bear employee. I am also multiply disabled. I am autistic, have Ehlers-Danlos Syndrome, and vasovagal nerve damage in my heart resulting in a tachycardia condition. I am capable of doing all

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

issueinside:My name is Meg, I’m 16 years old and everyday I fight a rare genetic disease called Ehlers Danlos Syndrome. The disease is on a spectrum and sadly I have an extremely severe form of the illness. I am in desperate need of brain/spinal surgery.

trust: forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

themakeupwitch:ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cell in the body is floppy, so fingers are definitely

lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally

mandymorbid: I miss having abs! Damn Ehlers Danlos Syndrome, I have lost so much muscle and it’s very hard work getting it back at physical therapy without hurting myself or making myself more ill. But I’ll get ‘em back.

trust: forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse

parliamentrook: squeeterbee: lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

Ehlers Danlos Support

forward:Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every day.

ehlersdanlossupport: I’m beyond exhausted yet I can’t sleep :(

Ehlers Danlos Support

thetorturedoctor: ahaze: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cells in the body is floppy, so fingers

ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cells in the body is floppy, so fingers are definitely an issue

ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cells in the body is floppy, so fingers are definitely an issue

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

mxcleod: trust: forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting

prettysicksupply: lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its

mandymorbid: Ahh nostalgia…I’m oiled with olive oil here because no one setting up these shoots ever thinks “oh what if my model is allergic to baby oil?” Also notice all the hyperextending elbows and whatnot. #Ehlers Danlos Syndrome #spoonie

issueinside:My name is Meg, I’m 16 years old and everyday I fight a rare genetic disease called Ehlers Danlos Syndrome. The disease is on a spectrum and sadly I have an extremely severe form of the illness. I am in desperate need of brain/spinal surgery.

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

prettysicksupply: lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

issueinside:My name is Meg, I’m 16 years old and everyday I fight a rare genetic disease called Ehlers Danlos Syndrome. The disease is on a spectrum and sadly I have an extremely severe form of the illness. I am in desperate need of brain/spinal surgery.

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally

justanotherpurplebutterfly: lancrebitch: alittlelostsputnik: tinyratfeet: aquasplendens: themakeupwitch: ask-a-zebra: Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

frazile: forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

forward: Hey there! My name is Meg and I’m a 16 year old girl with a rare disease called Ehlers Danlos Syndrome. EDS is a rare disease that affects every cell in my body, it is causing my body to literally destroy itself and is getting worse every

jenroses: elierlick:This is it See also autismSee also Ehlers Danlos syndrome & FibromyalgiaIt’s amazing how much more visible things become when you accept that they exist.

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